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Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery and news of events. http://www.mpssociety.org.au |
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Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided. http://www.gig.org.uk |
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Information about this non profit organization, news, newsletters, recommended reading and contact details. http://www.hdfoundation.org |
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Provides patients, families, and doctors with educational information and fosters an exchange of information about the diagnosis and treatment of HHT between patients, physicians, researchers, genetic counselors, agencies, educators, and the general public. http://www.hht.org/ |
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a nonprofit organization advocating for families and caregivers. http://www.mannosidosis.org/ |
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Information about the organization, their services and about the disease. Including events, newsletter, FAQs, message board and links. http://www.glutaricacidemia.org/ |
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Information about this disease and the international organization that deals with it. http://www.lowesyndrome.org |
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Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases. http://www.ldnz.org.nz |
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support group offering information on the disorder, and a membership-based newsletter. http://www.napxe.org/ |
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offers information and support for people affected by disorders of the autonomic nervous system. http://www.ndrf.org/ |
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a leading voice, authority, and advocate for the genetic counseling profession. http://www.nsgc.org/ |
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Provides educational and emotional support, and current information. English and French. http://www.sssac.com |
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