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This web site is intended for use by European physicians only. You must log-in to use this site.
http://www.fabrazyme.com/
Provides information and support for people with Fabry disease, their caregivers and families, and their health care providers.
http://www.fabrycommunity.com
Information about an ongoing observational database that tracks the natural history and clinical outcomes of patients with this disease.
http://www.fabryregistry.com
Information about the group and this disease. Join the group free of charge and receive a newsletter.
http://www.fabry.org/
Provides in depth education and support for patients and families.
http://www.nnpdf.org/
An organization offering support and programs geared to families affected by Tay-Sachs Disease and over 40 other fatal degenerative genetic disorders.
http://www.ntsad.org/
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